Prevalence of Glandular Fever
Please tell me if there is a specific place in the Forum for Glandular Fever related questions. I can’t find one, so thought I would put my question here if I may. Does anyone know of an online Support Group / Forum, similar to this, but for Glandular Fever? I can’t find anything.
Or, is it OK to discuss GF here in this Forum?
Hoping this isn’t a silly question
Lau_EA_Aus last edited by
You are welcome to talk about glandular fever. Many people with ME/CFS had an onset of symptoms after glandular fever.
I’m not sure of the prevalence but will see if I can find some stats tomorrow.
@Lau_EA_Aus Great, thank you I have read the 92% of the young adult Australian population have been exposed to the Epstein-Barr virus. That is a lot I’m thinking.
What puzzles me is, why do a percentage of that population not become very unwell with it, and some become terribly sick with it?
It’s a big question I know, but if anyone has any information or theories on this, I’d love to hear. Thank you
river last edited by
@bekind you could ask this question about any of the things that trigger ME/CFS, to be honest! My theory is that it all comes down to genetics - maybe a subset of the population has a gene that predisposes us to get ME/CFS in response to certain triggers
Dot last edited by
@bekind My theory is that almost any virus might cause ME/CFS, some viruses may be more likely than others, and repeated virus infections may make the ME/CFS response worse.
Glandular fever is one that seems to be more likely to lead to ME/CFS, Covid seems to be another.
There were a couple of strange cluster outbreaks in the US in the 1980's that may have been a virus with a high likelihood of ME/CFS following, you can read about them and other historical cluster events: https://en.wikipedia.org/wiki/History_of_chronic_fatigue_syndrome
But in the same way that some people can avoid ME/CFS, I think others can stop it developing and stop it from becoming intractable, through a mixture of good luck and good management. I have heard of people who struggled for a couple of years after Glandular Fever, but gradually got their lives back together.
How badly it effects us, may well depend on how sensitive we were to that virus (due to genes, our level of health, our viral load etc) which systems, organs, etc it affects, and how much support we have to manage it.
Hopefully all the research that is being done on Long Covid will be useful for us.
@river Yes, good point!
Dot last edited by
@bekind Thanks. We'll see what time and study shows.
In the meantime I hope your daughter can manage her symptoms and recover completely.
(I'm in Victoria, but I'm afraid I don't know a specialist to recommend. )