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    • M
      Marnie last edited by

      Hi, my name is Kerry and I live in South Australia. I have lived with ME/CFS for over 30 years and have generally coped well until about 6 months ago. I have had a huge crash and I am struggling on a daily basis. I had all the tests to exclude any other illnesses and my physician confirmed ME. Again. My husband and I are bringing up 3 of our grandchildren aged 8, 12 and 15. They have been with us for 8 years and they are wonderful but it’s hard work made more challenging by my current crash.
      My biggest issue at present is finding a GP who will support me, so if anyone has any advice I would be grateful.
      Many thanks
      Kerry

      Daffy_Dave G Dot Topcat 4 Replies Last reply Reply Quote 2
      • Daffy_Dave
        Daffy_Dave Community Moderator @Marnie last edited by

        Welcome to the forum @Marnie 🙂 We hope you're able to find support and community here. In terms of doctor recommendations, it's against forum rules to post names of doctors in the forum, but other forum members can send you messages via the forum chat. Best of luck managing your illness, and finding a good GP.

        If you want to find out how to set up a signature and a profile picture, see: https://community.emerge.org.au/topic/76/how-to-setup-a-signature-and-profile-picture

        For some tips on using the forum: https://community.emerge.org.au/topic/90/forum-tips-and-tricks

        M 1 Reply Last reply Reply Quote 1
        • G
          Glimmer @Marnie last edited by

          @Marnie welcome. Long time to be living with this illness, and the challenges that have come with it.

          1 Reply Last reply Reply Quote 1
          • Dot
            Dot @Marnie last edited by

            @Marnie Welcome here. So sorry to hear of such a nasty, dramatic worsening of your ME/CFS. So hard when looking after children (and even harder when you are a few decades older).
            It is good to have you here now though, I hope you can join in whenever you get the chance.
            🌻

            Wurundjeri Country

            1 Reply Last reply Reply Quote 1
            • M
              Marnie @Daffy_Dave last edited by

              @Daffy_Dave thank you 😊

              1 Reply Last reply Reply Quote 1
              • Topcat
                Topcat @Marnie last edited by

                @Marnie Gday Marnie, sorry to read about your return to the rigors and pain of this condition we call CFS. I also reside in SA and also like you am a long termer returned to the fold. I am not as aware of Drs as I was back in the days of the DIRC support group else I would have PM’d you with a few names, sadly my past resources are out of date. There is a however a local lady residing in the mid north who has taken over all the data who may be able to help. I rely less on Drs these days and depend on my life experience to manage my symptoms, extra hard now as I am a few weeks out of a covid infection and the two conditions dovetailed to create a new version of hell. Made worse now as my insulin pump has just alarmed and I am now in the midst of a hypo. Such fun managing multiple conditions, said tongue in cheek. All the best. TC

                Very Long Term ME/CFS PWC (also adult T1D) with a multitude of experience in managing and coping with this dis-ease/condition. It affects my life and at times is very debilitating, however, I own my diagnosis and will not allow it to own me.

                G 1 Reply Last reply Reply Quote 2
                • G
                  Glimmer @Topcat last edited by

                  All the best to you too @Topcat.

                  1 Reply Last reply Reply Quote 1
                  • gretch
                    gretch Community Moderator last edited by

                    Welcome to the forum @Marnie and lovely to hear from you @Topcat welcome back.

                    She/her
                    Kabi Kabi Country

                    1 Reply Last reply Reply Quote 1
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