Hello to April,
Hello to everyone.
Medals for making it through another month
I'm a bit bleurgg, a bit breathless, a bit headachey, but better than yesterday, so hooray for small wins.
Hoping you are well enough to do something nice for yourself today. What would it be?
I think mine would be to do a bit more on the potholder I am knitting for friend's housewarming (which was more than a month ago )
Even one row would be something!
Wish me luck.
And I wish you lots of luck for your little bit of something
I was going to do an April fools joke about being cured from CFS but decided maybe it wouldnt be the best idea
Taking my daughter to the allergy specialist for her nut allergy. Hopefully it isn't too painful...
@stevengao Haha yes, you could say you just used will power and you could do everything again
(And then we would all come through the screen at you and you would be dead!)
Best wishes for a really useful specialist appt. Hello to your daughter!
@Dot Haha too true about the willpower thing. Just came back. They did the skin prick test on her back so there a little bit of crying. $300 out of pocket to see the doctor and do the allergy test
artist55 last edited by
@Dot thank you for starting the new chat. You are amazing I hope you feel better throughout the day and that you are able to do your knitting 🧶
April is very welcome and I know I’m not alone in looking forward to cooler days! It’s still early 30s here, but mornings are fresher, so hopefully not long now.
I’ve been trying to do some label cutting for the pantry jars, but as usual, a job that would have taken me a couple of hours to do in the past has taken me 3 days and no guarantees that it will be finished today I’m learning patience…
@stevengao I hope your daughter is feeling better and that you identify the allergy soon.
It is working for me I have a lot to do and each time I look at the clock it is a nice surprise.
I've had a couple of better night's sleep (normally bad as opposed to absolutely dreadful) so everything is easier.
@stevengao A lot of money to find out what you already know!
But hopefully it is the start of good management. Do they have a scheme for overcoming nut allergies now?
Sympathy @artist55 so frustrating for tasks to go slowly
I bet they look gorgeous though!
Woo hoo I've written a post and it is still not 9am.
I'm hoping others are finding that it is a good day for getting a few things done.
One step at a time.
artist55 last edited by
Woohoo! The labels are finished (after making so many mistakes that an entire roll of vinyl ended up in the bin!) We won’t talk about that…
The sense of achievement was good for the soul though. Not to mention a nice, tidy pantry shelf thanks to my lovely DIL.
Cricut has turned out to be a low-energy activity as long as you can sit up for 30 minutes or so and type on the computer.
How is the knitting going, @Dot?
I wish everyone the reward of a small achievement today
Are you waking up and finding out which symptoms are worst today?
I'm dizzy, breathless, so muscle tensing practice is top of my list today.
@artist55 Yay, job done. And a beautiful practical pantry to help you through the year.
It is chilly here so I have pulled out some winter clothes and I am snug. Hoping all of you have clothes to suit your (internal and external) temperature, and the energy to change them as needed!
Sending best wishes to you today.
DJamie last edited by
@Dot Morning! Lovely to be back here. Had a few weeks to myself to reboot.
I'm currently curled up with Miss Bella puss, a hot water bottle & good movie as the period pain is on the cards for the day.
Pulled out the warmer clothes last week too, yay! Weirdly prefer the Melbourne weather over the humid Sydney weather now days lol
Got the hair washed & made it up to the supermarket for kitty litter yesterday...Winning!
Keeping all appendages crossed you get another potholder row in today! Sending out good vibes to the knitting gods for you, or is it the crochet gods lol
@Dot you won't believe it. After charging me hundreds the doctor goes "just leave it for now and come back in a year and try again. She might grow out of it" LOL
Good morning Tuesday,
Porridge for breakfast, heater on.
Hello everyone, how are you today?
@DJamie Hooray for rebooting, hooray for getting things done. (But careful!)
Curled up with Miss Bella puss is exemplary ME/CFS behaviour, I hope you are not in too much pain.
Yay! (Melbourne weather doesn't get many compliments! )
But hooray for no humidity.
@stevengao I really can't believe that!
What does 'leave it' even mean when someone has a nut allergy?
Oh yikes, one crazy day marked off our list, here we go facing the new one.
All power to you all
Hello you everyday heroes,
I am trying to write with Miso the cat on my knee, who is asking for head rubs.
And I am trying to write quickly (fail) as I need to get my flat ready for my home help angel.
But I wanted to send out some morning cheers and medals for everyone
My wife just told me I spend too much time at home and should try get out more often, within my ability of course. She's probably right. I've stayed at home for so long I think I'm developing a fear of going outside by myself. Gonna go watch a movie after lunch today Wish me luck!
@stevengao Well that went about as poorly as I could have imagined. I didn't realised The Batman is 3 hours long, and was a bit scary in places too. Was completely toast by the end of it. Had to go straight home and ask my wife to pick up our daughter today. I haven't watched many movies in the past year (kind of a big deal because I am/was a big movie buff), and each time I went I always thought to myself "I wonder if this will be the last time I come into a movie theatre". Looks like I'll probably shelf the movie adventures for now.
@Dot Hey Dot, can I ask how does your helper program work? What kind of things do they help you with and how did you apply for it?
Sending out good wishes to you all.
Got homehelp done. My home help worker is struggling with the after effects of covid, even though she did only have it lightly (and was fully vaccinated), she is very tired and hot all the time. She spent a couple of visits telling me all about it before she heard me say "Deb, this is my life!" (not the best listener).
Now she says "Now I understand what you have been going through" which I must say is quite nice.
She also regrets not taking covid seriously (it was 18 months before she wore a mask properly in my home - and still keeps taking it down to talk). She also said there are several workers off work because they haven't recovered well from covid.
She does feel she is recovering, and will have a couple of weeks off over Easter, so hopefully that will help.
@stevengao Oh No, aren't they making films long at the moment!
I hope you can recover quickly. So disappointing.
Re your question: I get 1 1/2 hours of home care (housework) a fortnight through my local council. Basically I get my bed changed, bathroom, toilet and stove cleaned, vacuuming done and floors mopped.
I applied over 20 years ago when I was a single mum with a 6 year old. In my assessment I was trying to explain how hard things were, and the social worker wasn't at all convinced until I explained that sometimes I had to give my daughter vegemite toast for her evening meal because I was too ill to make anything else. She bounced up quickly then and gave me two hours a week. It was such a life saver (and I had a lovely worker then who was like a mum coming around and giving a hand with everything, such a relief).
My daughter grew up and moved out and I cut down home care time as much as I could.
These days my council concentrates on elderly people and NDIS is meant to help everyone else, but NDIS didn't take me on and I am still under the council scheme. It is different guidelines everywhere.
So I can't give much advice, except try and find out what is available to you, a bit of help can make a big difference. It is hard work to find out, and then apply, but keep at it when you can.
Even back twenty years ago it was so random re who (with ME/CFS) got accepted and who didn't .
Well, I'm planning a quiet gentle, ME/CFS friendly day. I've offered to have the grandkids (5 and 7) on Saturday morning, so I want to be in the best shape possible.
Best wishes everyone,
Hoping your day is quiet, gentle and ME/CFS friendly too.... Oh no! Some of you are at work! Some of you are parents! Appointments! Shopping! Aaaaagh. Can any one have a gentle day?
@Dot Single mum with CFS. I can't imagine... When I read your posts these days I thought you seem to have quite a positive demeanor. I guess with what you went through, it wouldn't surprised me if you had gained alot of perspective in that time. If I had been in your shoes I would have been worried they would take my daughter away. So many questions about how you managed through that time and how it affected your relationship with your daughter. But perhaps in due time.
I've read some people on the facebook CFS group having successfully made a permanent disability claim against their insurance. I might give that a go and see how that goes. Dreading the process though knowing how difficult it will be.
I hope you can keep things under control and build up energy to play with the grandkids!
It is a cool and lovely sunny morning here.
I have already had two cups of coffee and I want more. But I think I had better abstain.
@stevengao Thankyou. They were hard times, and everything is comparatively easier now. It had got to the point where they would have been right to take my daughter somewhere she would have been properly cared for. It certainly made all the other things I had to give up to manage ME/CFS easy decisions.
Good luck with that claim.
@artist55 Are you on holidays now?
Sending out good wishes to everyone,
@Dot Testing, testing.
@Glimmer Yay, I’m back in action - well at least on this forum! Thank you Emerge.