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    My blog about life with ME/CFS

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    • river
      river last edited by river

      I started a blog, diary sort of thing during this crash to alleviate boredom and anxiety
      https://riverofexhaustion.wordpress.com/

      Lots of reading and none of it pleasant I'm afraid. I talk about unpleasant symptoms in excruciating detail. It's not like I can think about much else. I can write the posts in more lucid moments but not read them back! Proofreading is done haphazardly over several days. Really struggling with my perfectionist tendencies.

      Not sure why anyone would choose to read it. But I think it should be required reading for caregivers!

      Pronouns: they/them - ME/CFS since 2017

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      • I
        iris @river last edited by

        @river skimmed through. How much did it take to trigger this crash? My illness is very predictable which probably makes it a zillion times easier to manage.

        river 1 Reply Last reply Reply Quote 2
        • river
          river @iris last edited by river

          @iris 3 months of chronic emotional distress and physical over exertion, 1 smaller crash triggered by multitasking while eating, which I didn't fully recover from, and 1 day of intense physical exertion on 38 degree day

          Pronouns: they/them - ME/CFS since 2017

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          • I
            iris @river last edited by

            @river is it exceptional for you to do those things and we're they unavoidable ( except for the multitasking)? Shifting is hell.

            river 1 Reply Last reply Reply Quote 1
            • river
              river @iris last edited by

              @iris yeah, I've been in a really bad situation for the last 6 months which I couldn't do anything about. I knew it was coming but had no choice. Also nobody believed me when I said "I'm going to get worse if I do x", which then made me sorta not believe it as well, still nothing I could do but maybe if I'd been more supported it wouldn't have been quite as bad

              Pronouns: they/them - ME/CFS since 2017

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              • I
                iris @river last edited by

                @river I think writing the blog is a good idea

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