Suggestion Box



  • @EmergeAustralia I think it would be good to differentiate between more medical-specific discussion (e.g. medications, therapies etc) vs living with ME/CFS. I'm not sure what the medical side could be termed, but hopefully a few topic titles would make it clear what the section relates to.

    However, there's going to be overlap. I think pacing belongs in the 'living with ME/CFS' because I consider it a management strategy, but others might think it should fit more under medical. I think living with ME/CFS will end up being the broadest section, because it's kind of the 'catch-all' section. And I think it should definitely be separate to 'the lounge'.



  • @EmergeAustralia I've been trying to think up an alternative name to "medical" and all I can come up with is "health" which feels way to broad in this context. Hmm 🤔



  • What about a title of 'Diagnosis, symptoms, pharmaceuticals and management strategies' - with a few starter topics underneath? When I think of 'medical stuff', these are probably the key things that spring to mind. I thought about including the word 'treatments', but since for Centrelink and NDIS purposes, we generally write 'there are no treatments', I didn't think it's suitable. And contrary to my previous comment, pacing could fit under this topic, rather than living with ME/CFS.



  • Suggestion: can the forum be made to allow uploading images without resizing them first? It would be great if it could do the compression/resizing automatically. I can't upload photos from my phone because they're too big, I have to send them to the cloud then resize on my computer before I can upload them. That's bad for my brain fog 😢


  • Community Moderator

    Thanks for the feedback @river - I'll pop it on the list and see what we can come up with 🙂


  • Community Moderator

    Hi @river 🙂 I've had a look at the file settings and increased the max size limits a bit (hopefully files up to about 3.8MB will load, and be automatically resized for people viewing them (but also be able to be clicked on to be viewed full size). How large are the files your phone makes? It's possible to increase the limits beyond 3.8MB, but that'll take a bit more forum-fu to arrange.



  • @Daffy_Dave my phone photos are about 4.8mb I think. These damn high definition cameras! 🤦🏻



  • Hmm, it seems to vary actually. I have some that are 6mb and others under 3mb. I just tried to upload one that's 3.3mb but it wouldn't let me.


  • Community Moderator

    @river Thanks, that's very useful info 🙂 I'm afraid I think I've pushed things about as far as 'tinkering with the settings' will let us, but there is room to look into it further - it'll just take a bit more time.

    One more question, if that's alright - do you know what file types you're trying to upload (eg, .jpg, .png, .tiff, etc.,)?

    I'm a little perplexed as to why it won't let you upload a 3.3mb image - I tested with a 3.8MB image and it allowed that - so will do some more thinking on that front. In the interim, and as spoons allow, there may be apps available that can resize images on your phone, getting around having to move it to a computer to resize it - but we haven't given up, and hope to be able to make the forum a bit more 'phone-image-size-friendly' 🙂 There's just bit involved in that than I'd hoped.



  • @Daffy_Dave thank you for your efforts! They are all jpgs.



  • Testing again

    PXL_20201225_050303819.jpg



  • This is not so much a thought/suggestion as a question: Is it OK to create a post seeking suggestions via private messaging of medical practitioners on the east coast (especially Sydney) who have been helpful with diagnosing and treating ME, in particular for adolescents? I understand people cannot be named, but can these recommendations be sent privately?



  • @Elizabeth-S absolutely! We're very happy for people to do this. It's just the public naming that gets awkward. Thanks for checking!



  • @EmergeAustralia Thanks so much!



  • Suggestion: make a dedicated section of the forum for covid related threads, as we are getting more and more of them (then move the existing threads into that section)


  • Community Moderator

    Thanks for the thought @river - that's a good idea 🙂 It probably won't happen tonight, but all being well ill tomorrow.


  • Community Moderator

    Just letting @river know that there's now a "COVID-19 related discussions" category in the non-public discussion area - thanks for the suggestion, and if you have any other thoughts (or anyone else does) please don't hesitate to mention them 🙂


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