Welcome to the Community Room! introduce yourself and say hi
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@kayelle Oh you did get a difficult start to life. Glandular fever is a very common start to ME/CFS unfortunately.
I hope you are managing to avoid pushing yourself too hard, even if those unpacked boxes are sitting there staring at you accusingly! -
Hi.
I've been struggling with ME/CFS since April 2019. I'm a single mum with a 6yr old son, I work part time and I struggle to get through every day. Most nights my son is the only one who eats because I'm just so tired that I don't even care about myself anymore. Sometimes I've dropped him at school and I've got no shoes on, or eaten anything because I take so long to get moving in the mornings and I don't have the time to sort both of us out so obviously he will be the priority but it's embarrassing. It's quite hard and I feel like I fail him a lot because I've never got the energy to do anything with him and I'm forever tidying the house because it takes me 10x as long do get things done.
Anyway, I'm looking forward to getting to know people on here and learning some ways to help me cope with the day to day things that are such a struggle to get done when you're constantly exhausted.
I edited it because it was so down and depressing when I read it back and I felt bad. Life is still good sometimes and we have good days, it just sucks always feeling shattered by 2pm.
Cheers
Jo -
@mcnibbles Welcome here.
Being a mum with ME/CFS is SO hard.
Congratulations on keeping your little one fed and taken to school.
I've been there.
Housework is impossible! -
Welcome to our little community @mcnibbles. I hope being with us helps a little.
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Hello everyone,
I am a university student in my twenties from South Australia. I have been dealing with with a variety of symptoms since 2018 and finally received a diagnosis of CFS at the start of 2021. It was such a relief to finally have an answer as to why I had been feeling rotten for so long, especially because almost every test I had done came back with normal results. Whilst I don't know for sure I have a feeling that I developed CFS as a result of testing positive to Ross River Virus in 2018.
I am so glad to have come across this community and hope you all have a lovely day
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@izzyblue26 I'm from SA too
nice to meet you! -
Welcome @izzyblue26. Nice that you have joined our little group.
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Hi @izzyblue26, it’s lovely to meet you.
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Hello and welcome @izzyblue26
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@izzyblue26 welcome
I hope you will enjoy being part of this community as much as I do! -
Hi folks, I'm a long-termer. I'll try to be brief.
I got sick in 1984 when travelleing through California/Nevada during the Incline Village cluster outbreak. I was diagnosed with ME by a GP in England. In 1992 I contracted the Epstein-Barr virus and developed Glandular Fever in Brisbane. My health deteriorated further and was eventually diagnosed by a haematologist. After a long battle, I was awarded DSP by the Administrative Appeals Tribunal. My health improved and I moved back to Europe and was almost fully functional until I had a flu vaccine in 2003 and crashed for 12 months. I returned to Australia in 2008.
I've been able to self manage since then but recently hit another glitch after my third dose of Pfizer. Up to that point, I was able to work part-time. I spend my days resting and pottering around the house. I refer to my condition as Post Viral Chronic Fatigue Syndrome as I'm not comfortable with the ME/CFS label. I'm not sure whether my current flare is related to the COVID-19 vaccine, but I don't regret having it. The old symptoms, that I thought were behind me, have returned.
I'm listening to my body and getting as much rest as possible. I moved to the Central Tablelands area west of the Blue Mountains a year ago and haven't been able to find a GP that is experienced in working with CFS patients. Any recommendations would be much appreciated.
Cheers,
John -
@izzyblue26 Hello and welcome!
Sadly, Ross River virus does morph into ME/CFS way too often. Much sympathy for the last three of four years.
Great to have you here, do come and join in as much as you can. -
@johnbx Hello to you and welcome here. What a horrible roller coaster you've been on, although hooray for the good years in between the bad ones.
Fingers crossed your health might improve again.
Looking forward to seeing your posts here.
(No help with a doctor sorry). -
Thank you all so very much for the warm welcome
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Hi everyone! Just found out about you from an article about long covid and how it resembles chronic fatigue. 33 years and finally people get what I'm talking about
I'm considered mild to moderate now. It's been a few years since I fell asleep at the dinner table.
My management is better since working part time -
Hi @lucyg really glad you found us. Welcome to the forum.
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Hello @lucyg. Welcome to our forum.
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@lucyg hello!
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@lucyg Welcome
I hope you will enjoy the support from this wonderful group of people. If you need support to get started feel free to reach out
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@lucyg Welcome here
I hope you are able to join in here often.
However I do imagine you need to work extra hard to manage ME/CFS and part time work. Medals for you!
