Welcome to the Community Room! introduce yourself and say hi
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@pcmwilliams Hi Peter. Welcome. Looking forward to hearing from you.
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@pcmwilliams Hi Peter, and welcome to our Emerge Australia online community forum! It's so great you have joined us here. Let us know if there is anything we can do to support you.
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@pcmwilliams Hi Peter and welcome!
Hooray for working together to manage our ME as effectively as we can, so that we can live fulfilling lives.
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@pcmwilliams Hello! Nice to meet you
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Hi everyone, My names Liz. I am 29. I was diagnosed with CFS around age 14. I never thought I would still be be living with its effects 15 years later. I love that this forum exists as it is really difficult to get any support or sense of community in my personal experience living with this diagnosis. I'm really looking forward to chatting and hopefully getting to know you all.
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Welcome @lis to our forum, where we understand what a tough illness this is. We can vent our frustrations, have a laugh or share what’s going on in our daily lives.
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Hi @lis glad you found us and looking forward to getting to know you too.
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@lis nice to meet you and welcome!
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@lis Welcome!
I also know that shocked feeling of a chronic illness when previously getting sick also involved getting better!
Looking forward to chatting here.
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Feeling grateful to have found a community of souls who’ve navigated their way to this safe place.Like so many of you, I spent a lot of years struggling to function, before acquiring a mecfs diagnosis. Another to add to a string of acronyms that ‘medically’ define my body’s quirky operating system.
Currently crawling out of the biggest crash of my life, that ironically lead to the diagnosis. Mostly bed bound.
Soon to receive treatment for POTS. Learning to love wearing a heart rate monitor without getting too anxious about it, because it helps me understand my limits and manage pem.
Looking forward to chatting when I am able to!
🦓•🐴•🐨•🦉•🐌•🐢•🕊
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Hello @andie welcome to the forum. Hope the crash continues to ease so the chatting can commence.
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@andie Welcome Andie. Hooray that you found us.
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@andie welcome, I'm in a terrible crash and mostly bedbound too atm
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@andie, Hello, it’s nice to meet you
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@andie welcome
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Hi everyone I’m so glad to have found Emerge Australia.
I’ve been feeling very isolated and alone struggling with my symptoms. I first got CFS over 40 years ago and luckily only had a few relapses/acute phases over the intervening years that would last between 2 and 12 weeks, however I wasn’t officially diagnosed with CFS until last year when I changed my neurologist.
In February 2020 I had a major relapse following a severe viral infection and was bed bound for four months.
I’ve been in another acute phase with my CFS since August 2021 which coincided with my Pfizer vaccinations and then got worse during my move to Melbourne in October in the midst of the delta wave. I am still slowly unpacking and trying to organise when I have energy. I basically work from home three days a week and collapse on the other days.
I am hoping to find a supportive GP that understands this condition to get some help with identifying triggers, understanding pacing and management of my symptoms. Also how to explain my condition and my limitations to friends and family. I have some other chronic health conditions and disabilities to manage and it can feel overwhelming at times, but I’m very good at masking how I’m feeling and most people either don’t understand the condition or they think I look fine.
I’m curious if anyone else had an onset of symptoms following vaccination? I’m nervous about getting the booster shot in case it makes my current relapse even worse. Not sure if Moderna would be a better option or not.
Ok that was a much longer intro than I’d planned.
Basically I want to feel like Tigger, or at least a muddle headed Pooh Bear, and not Eeyore.
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@kayelle Welcome! That’s incredible that it took that long for a diagnosis! Amazing what can happen if you change GP’s or specialists.
Sorry to hear you had a reaction to the Pfizer shots. I only had mild side effects after my 1st AZ, and I have my Moderna booster next week.
Well done surviving the big move. Slowly does it with the unpacking! -
@kayelle hello and welcome here
Did you know you had ME/CFS all along?
Sympathy re the move. I had to move a lot in the early years of my illness and with each move my illness became worse and more intractable. So fingers crossed
you don't have to move again for years.
Welcome to Melbourne! (or back to Melbourne?)
So awful to hear of your terrible reaction to the vaccines. I hope that doctor (when you find them) can give you good advice for your third one.
All good things.
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@glimmer I had a very severe infection following an operation 42 temp and got glandular fever when I was 10 and I did grow up with a lot of mold in my bedroom which I’m sure didn’t help. Had a great GP at the time who restricted me from sport for a year which was tough because I was very athletic. She was ahead of her time in seeing a link between post viral fatigue and glandular fever. I’ve been fairly lucky until recently. In the past I used to think I just took a very long time to recover from colds or flus not realising what it was.
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@kayelle, Hi, it nice to meet you.
I hope you are feeling a little more settled after your move and your belongings are slowly finding their new homes in your new home. 
