Welcome to the Community Room! introduce yourself and say hi
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@river Hi River,
Many thanks for your reply.
I've just this week had a consult with a new GP who has diagnosed & managed patients with RRV. He is the first person to listen to me ,& has ordered several blood tests that aren't mainstream to get a picture before managing my condition. I've another extended appointment in a fortnight's time where we'll discuss future actions to be taken .I accept that a complete cure may not be possible,but improvement of quality of life is my aim & to be more active again .He is a bit of a lateral thinker too which helps.
I think if every patient who walks thru the doors of GPs had forms of post viral fatigue they would do heaps more research & come up with better answers/options/ treatment etc .There is more money spent on research for hair loss in the western world than there is on Chronic Fatigue .You just have to keep digging ,like the guy in the book - "Awaken Wellness " who recovered from being bedridden with Chronic Fatigue .
Thanks Chrisso -
Hello!
I was diagnosed almost 20 years ago after a long and windy road ( which I’m sure is a familiar story). -
@Trae hello. Definitely familiar with the road. Nice to have you here.
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@Trae Hello pleased you've joined the forum
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Hello, Trae, Please to meet you!
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@gretch Thank you! Yes.... the road covered in detours, wrong way go back and dead end signs!! Still, as a result I became a more widely researched health advocate
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@crashdummy Thanks for the welcome!
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@donnamarie Thank you! Pleased to be here!
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Hi is anyone from Tasmania or are there any good support groups in Melbourne ?
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@Kristy Welcome to the forum Kristy
I imagine you're still making a huge effort with ME/CFS, and just because people can't see it as much (particularly if they're not familiar with the illness), that doesn't make you any less hard a worker -
@Kristy Hello Kristy pleased to meet you.
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Hi, Kristy, Pleased to me you!
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@Kristy said in Hi my name is Kristy mother of five
diagnosed a couple of years ago used to be a hard worker and sociable I'm age 42 feel like 21 but body and brain 80yo looking for some friends who understand what we are going through :Hi is anyone from Tasmania or are there any good support groups in Melbourne ?
Hi Kirsty and welcome! Wow a mum of 5 kids it must be so difficult for you everyday. I unfortunately do not have any kids and I know how hard it is for me without them! So I really feel for you. You should be very proud of yourself as you are doing an amazing job with a horrid illness. This is a good place to be, as we all understand each other.
I really hope you have some support from family and friends?
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Hello!
I was diagnosed almost 20 years ago after a long and windy road ( which I’m sure is a familiar story).Hi @Trae yes a very familiar story. I have been the same, over 20 years and now I realise actually even longer than that, after an illness with glandular fever when younger. I was never right.
Yet it was 22 years ago after a horrid “flu” that knocked my socks right off!
I hope you have some support around you?
Welcome to here -
@Chrisso said in Post viral chronic fatigue:
@Chrisso Hi everyone I'm new to this forum ,thank you for letting me join!I am not sure where to begin - I was diagnosed with Ross River Virus in 2018 ,& since then my health hasn't been the same .I believe I suffer from a form of Post -Viral Chronic Fatigue .I have had a series of tests bloods, sleep apnea tests etc only to be told nothing .I'm in the process of getting a referral to a physician specialist in infectious diseases .I've seen 3 G.P.s & a Naturopath to no avail .I used to be very & healthy active ,but now its minimal & have to pace what I do ,I'm in my early 60s and still work full-time .I am taking Melatonin 2mg at night to assist in sleep quality .Can anyone shed light on my situation ,or have similar experiences ...?Thank You -Chrisso
Hi @Chrisso and welcome and good luck with your new GP! Fingers crossed you can get some relief happening
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Hi everyone!
I’m 24 years old and was diagnosed with CFS almost 7 years ago after countless tests for everything under the sun.
Since being diagnosed I have discovered that many of the other health issues that I deal with are all associated with my CFS including migraines and food intolerances.
I am currently on day 5 of my current “crash” or PEM episode and stumbled across this forum looking for answers on what I can do better in the future to prevent this.
As much as I wouldn’t wish CFS on anyone, it is comforting to know that there are other people out there who understand what I’m going through and deal with everyday. -
Welcome @Bubbles22
Sorry to hear you're going through a run of PEM at the moment - take care as best you can and I hope it settles soon. You'll definitely find people here who can understand. -
Please to meet you!
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Thank you, it’s lovely to meet you both
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@Bubbles22 Hello, pleased to meet you.
