Yes, October has begun.
A lovely farewell to September @coco
I've got a busy morning and the couch booked for the afternoon. So glad food is organised (my carrot soup came out a treat).
I've just finished watching the final season of Rosehaven. What a treat. I'll look through to see wat to watch now.
Sending best wishes to everyone and hoping it is an easy day.
PS My friend who struggles with a lot of anxieties related to Austism sent me an email last night about a useful concept called 'Spoon Theory' she had just found out about, that helped her understand how she used so much more energy when she is anxious. Isn't it a great theory for so many conditions!
@Dot I've been meaning to start a thread on how helpful spoon theory is. It was such a light bulb moment for me when I came across it as a way to understand how I had to manage my day, especially if only one or two spoons are available and how I could explain it to others.
Hi @Dot and @gretch, I heard of spoon theory when my sister started having health problems with endometriosis. Really helped me understand what she was having to deal with and now I'm unwell too it's is helpful to explain it to others!
Another good analogy that I saw on Instagram from my chronic illness physio Zoe Mackenzie is a cup that gets filled up from activities. She has lupus, migraine, EDS and a few other things so she has a good perspective.
Your baseline is the size of your cup. Mine is a shot glass right now I'm in a crash, and when I was doing better a few months ago it might have been a milkshake glass. A healthy person's might be a huge sink!
When you go over your baseline, your cup spills over and your symptoms flare or for us we get PEM. Maybe your activity went too long and it's like leaving the tap on. If you do things in small amounts it's like adding drops at a time.
Sometimes if you manage well over time you can get your cup to get slightly larger and you can add a few more drops during your day.
Hey @Dot ! is this a general anything goes chat type thread?
It is slow, slow Saturday for me
@coco Hi, yes, a little thread that is more chatty and gentle socialising on that easy daily level. Maybe a topic mentioned here might turn into its own thread (spoon theory?) or someone might be inspired to go and check out other threads on particular subjects, but for me it is mostly like the birds waking up in the morning chirping out "I'm here, are you there?" and feeling that sense of community and catch up.
Maybe I've not quite got little bird energy this morning though!
I also came up with an analogy inspired by carrying those small hay bales https://t4.ftcdn.net/jpg/01/37/96/81/360_F_137968124_Sk7e7h984dAsmZ9xnIJYDSe6ElJLJMSb.jpg when I used to help out on my sisters farm. They are heavy!
The burden of chronic illness is like trying to do things while carrying one those around on my back. And you get even tireder because it is there all the time. Lying down is the only break. Sometimes the bale gets smaller and things are easier, but sometimes it gets bigger and you can't even get up.
Look at me, I'm too tired to stop writing.
Cheers everyone, sending good wishes for your day.
@Dot Hello Dot. Sorry to hear it’s a slow tortoise day for you today. Which reminds me, there was one walking down the road in front of the house yesterday, and I was concerned it would get run over. But slowly, slowly, I think it got where it wanted to go…. Take it easy, at a snail’s pace perhaps?
Sorry to hear it's a slow day for you @Dot. Hope you go ok
I like the hay bale visual too! My partner is a farmer so that fits nicely!
I forgot to say that I also finished Rosehaven. I'm sad it's the last ever episode! Daniel and Emma were such a great duo
Good morning, it is a gentle Sunday here and daylight saving has begun (but for some reason my computer hasn't worked that out yet).
Yes, a very slow tortoise day for me yesterday (and I would have added snails but couldn't find the emoji). Thankyou so much for your kind wishes @Glimmer and @emsarah.
Luckily I could give the day to myself (mums out there, kids do eventually grow up and move out!) so I am hoping I can do a bit more today... no sign of it yet though
@emsarah so true about Rosehaven I might watch it right through from the start again.
Ha, yes you will understand about the haybales, and there is something about how itchy and irritating they are, that fits the analogy too.
What do you have on the farm?
(Woot! I just changed my computer time. My brain is working!)
Sending good wishes to everyone, I hope your brain is working too!
@Dot I am on my phone so I could find you the snail emoji for you! Hope your snail maybe becomes a tortoise take care
Rosehaven is definitely a show you can rewatch!
I actually have come down the farm today because my partner has shearing all week. A bit of change of scenery...I won't actually get to see the sheep but I might make it outside to pat his dog Apart from sheep, there's also crops - canola, barley, lupins, lucerne. I think they might also be cutting hay soon actually! What does your sister have on her farm?
Hi everyone ... just caught up with the posts after being out of action ... very appropriate analogies, timed perfectly to match my sluggish PEM that is just lingering. I sense it could hit hard, so I've laid low and kept my activity to a bare minimum ... I woke this morning and headed for the kitchen, and found my husband was changing the clocks. I thought , oh good ...he's changing the clocks for daylight savings. He rummaged and frantically darted around the house and I watched him replace the batteries in the clocks. I asked "Why are you changing the batteries on both clocks ...are they both needing it? ... He replied ... ''I don't understand they are both on the wrong time ... they must have slowed down ... it's the weirdest thing"
Well, ... I milked this seniors moment for the rest of the day. Hope everyone had a lovely day!
The (so called) 'gardener' is at the flats here with his leaf blower. Is there a worse noise in the world?
At least it will end soon.
I'm hunkered down inside with my coffee and avocado toast, so not too bad.
How is your day?
@emsarah Thankyou for the snails! They have exactly the right expression on their little faces, it is like looking in the mirror!
My sister's farm had sheep too (they've retired now). It was mostly rice but I didn't have much to do with the rice. (Just over the border from Swan Hill). I was rouseabout at shearing a few times. I like sheep.
@crashdummy I laughed so much at your clock story. Oh dear, Mr Crashdummy will never live that down.
Or was he being brainfoggy just to make us all feel better about ours?
It is a fresh week and I am not feeling too bad. I am going to write a list of all the things that need doing. It will be a very long list, and I will put in lots of tiny little things so I should be able to tick some off at least!
Best wishes everyone, I hope you can do some good things for yourself.
@Dot Morning .... I know what you mean about the leaf blower noise ... noise and ME ....aaargh!!! .... there is a worst noise and that's a nutri bullet ... when this machine revs up in our house, I can't bear it and have to leave the room. If I have to use it, I wear headphones and I mean the really huge ones that muffle all noise .... Hope the list isn't too exhaustive in both instances ...one writing it and two executing on the tasks ... I have one task today that's non-negotiable and that's a doctors appointment. Have a great day everyone.
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Hi everyone I’m revelling in the gift of being able to rest today even though it’s a Monday. It will be a different story next week though 🤪
I’m sorry you have been unwell, @Dot and hope you feel better soon. Don’t do too many things on the list!
Best of luck with your doctor’s visit @crashdummy. I hope it doesn’t take too much out of you.
I enjoyed the spoon theory graphic, @gretch. I’m a visual learner so it made it a bit easier to understand. The term baseline remains a mystery however…
Last night my poor daughter came down with gastro so desperately hoping that Glen 20 is doing its job and the bug won’t spread!
Stay safe and rest as much as you need to, everyone.
Cold, grey, brisk wind... but still a beautiful morning to be alive in.
Hello everyone, what is it like outside your window?
@crashdummy ooh good call that nutribullet, horrible noise and inside the house!
I hope you managed yesterday's non negotiable task well, and especially that they weren't running late (sitting for an hour in a waiting room just kills me).
@artist55 Another day to revel in! Revel very slowly and gently!
I do hope your daughter is improving quickly and that no-one else comes down with the gastro!
Hmm, yes, that few weeks of taking my friend to her appt on Mondays seems to be leaving me with a long tail of health repercussions and while I am doing good, I am doing it very, very slowly.
I'm still trying to get past the triage stage where I just work out what I have to do today, and write that list (didn't manage it yesterday). Today might be the day!
Special call out to those of you going to work today.
I wonder how many of you are reading, part grateful that you are still managing to work, and part envious of those of us at home?
Best wishes and all good things
artist55 last edited by
@Dot Sorry the consequences of your good deeds are catching up with you. Best of luck with the list making
Today is a very slow couch day for me but it looks sunny and windy outside. ️
Good news is that the gastro didn’t spread and my daughter has bounced back to full health
Have a lovely day everyone!
Hello, it is beautiful here.
I've had a busy morning getting ready for my homehelp angel, and had to put up with the leafblower guy at the nextdoor townhouses, but at least it wasn't a nutribullet
I hope you are having an easy couch day again today, @artist55, with a little bit of studio time if you are up to it.
I seem to be on a roll of having a good day and so doing a bit in the garden... and then having a bad day. I will have to restrain myself and see if that works - but it breaks my heart.
Hoping everyone else is on a more productive roll!
Haven’t spent any time in these monthly threads so ‘hi’
Random thing from this morning…..
So I’ve been learning a bit about nutrition etc trying to level that up
Today i finally added some greek yoghurt to my morning cooked oats and holy moley it was GROSS Lol BUT…..
Woah i feel so satisfied. I usually am left wanting more after brekky (mostly carbs i guess), but yeah idk if i ta the added protein? But i actually feel totally satisfied.
Am going to need yo figure put how to make this greek yoghurt more palatable if i want to be able to keep this up.
Happy new moon everyone
Ps i appreciate you talking about noise PEM bc that really affects me too but i tend to dismiss it especially if theres nothing i can do about the noise (like the effing generator from some council worker? that was going on earlier!)
Anyway hope you’re all doing ok ish
@coco I’ve never tried yoghurt on my porridge before. I load mine up with blueberries (high antioxidants and Vit C) and hemp seed. I was trying coconut milk but it was giving me heartburn, so it’s now back to the dairy, which I can tolerate. I’ll try a small dollop of yoghurt on top tomorrow. And I can go quite a few hours without needing anything else to eat.