September Chat

  • @artist55 Sounds like you have some busy days ahead. I hope you’ll be able to find some ways to take rest breaks, have easy meals etc. Look after yourself. 😌🐝

  • Friday, Friday,
    Another precious day.

    Unfortunately I am not well enough to mind my darling grandkids today. So disappointed. But that is life with ME/CFS.

    At least I made some very nice coffee this morning ☕

    Ooh @artist55 you definitely need a planned sick day next week. It is likely to make the difference to you getting through to the end of the year. Seriously. Take Monday off. If you can't take Monday off, make it Tuesday.

    I do hope today's art exhibition goes really well. And the Open Day. (But if you need to take either of those days off, do it!)

    Excellent blind typing!

    Glimmer, the podcast guy is a bit fast (although I have heard faster 🙄 ). We need one of those players where you can slightly slow it down.

    Hooray for fresh air when you are feeling dizzy.

    Well, I'm having a nurturing, kind-to-self day today, and I hope you all can have one too.

    Here is some coffee to share ☕ ☕ ☕ ☕ ☕ ☕
    And for those of you who can't/don't have coffee 🍺
    Oops! probably not the best idea! Here you go 🥛
    (Can't find emoji's for tea or water)


  • Saturday, woken up by the wind!

    I had a covid test yesterday because sore throat and glands up 😞 . Yay it was negative. Just the old ME/CFS, so I can go out... when I feel a bit better. I am going to have a snuggle day.

    Sending best wishes to everyone for a gentle weekend.
    @artist55 I hope you haven't got a cold and windy day for your open day!

    I'm off to make a pot of coffee with frothy milk (my weekend special).

    Medals for everyone today 🎖 🎖 🎖 🎖 🎖 🎖 🎖 🎖 🎖 🎖 🎖 🎖 🎖 🎖 🎖

  • Community Moderator

    Very glad to hear you don't have COVID @Dot , but sorry to hear the bod's playing up - a snuggle day sounds very appropriate - I hope you enjoyed the frothy coffee ☕ and that the bod settles soon.

    And best of luck for today @artist55 - I hope it's as manageable as possible. I'll sacrifice something to the PEM gods in the hope they go easy on you.

    I'm a bit PEMmy today - multiple non-negotiable draws on energy during the week, plus likely some mild lingering post-Pfizer effect. Looking forward to a quiet one with my feet up for the most part, and if I'm lucky a bit of a read.

    Best of luck to everyone - take care as best circumstances allow, I hope your days are as gentle as possible 🙂

  • Woohoo! Both the art exhibition and Open Day are over for another year😊 Thank you for the kind wishes and thoughts everyone! @Dot @Daffy_Dave I hope you are both feeling a bit better today. Sorry about the PEM-iness and missing out on family time etc.😔

    For the first time in 14 years I didn’t stay to clean up the mess in my classroom, and came home to rest instead.

    All the smiling through gritted teeth as unsupervised toddlers explored precious displays with sticky fingers and making small talk with helicopter parents just depleted my energy stores today!

    I’ll deal with the mess on Monday morning before school and probably regret that decision. 😂

    Rest up, snuggle up and be kind to yourselves today. 🤗

  • Sunny Sunday morning,
    I'm feeling a lot better so nicked to the shop (but better take it easy the rest of the day).

    @artist55 Hooray for you. Listening and being responsive takes so much energy!
    I hope you can do plenty of nothing today.

    Wouldn't it be nice if the fairies came overnight and tidied the art room. (Next stop, across the Nullabor and into my kitchen).

    @Daffy_Dave I hope you had your feet up and book nearby all yesterday, and feel better for it today.

    Well we've got a cool change coming so maybe I will sneak out now and give the compost a turn. It is getting easier every day (not because I am feeling better but because added mulch and lots of turning makes it light and airy)

    Then to rest! 😴 😴 😴

  • Good that you’re feeling a bit brighter today @Dot but I hope you turn the compost very gently. Well done @artist55 for getting through the past two days. I hope you’re able to rest up today. And @Daffy_Dave I hope you have benefited from your rest yesterday and you’ve got a good book to read. And best wishes to everyone else out there. 😌

  • Good morning,
    The sun is shining through the window again, and the rain watered my plants.

    Great advice @Glimmer I listened and I was sensible with the compost.

    A big relief because I have a big day today. An appt with my exercise physiologist (trying to build my core strrength without making my CFS worse) and also taking my friend to another radiotherapy appt.

    Cheers to everyone. Hoping you can start this week off nicely.

    Have a cuppa! ☕ ☕ ☕ and a medal 🥇 🥇 🥇 You deserve both.

  • Hello everyone ... seems everyone has been plodding along ... A new week and it's all about appointment setting for me. Unfortunately the GPs in regional areas change quite often and I have a new one to see soon. More MRI's needed and other checks: the good news is I don't have to travel to Melbourne for these appointments anymore as telehealth video calls have solved that problem and our region now has the capacity to do the specific MRI that the Melbourne hospital require, although bookings are needed well in advance. I'm booking for an appointment in January 2022 .. early bird catches the worm I suppose ... Everything is bulk billed through Medicare which I am so grateful for .... I don't know if anyone has had to fill out a travel form before if travelling to a major city for medical but I'm sure glad I don't need to this time round. The rebate for travel is great but getting the form and having it filled out at the appointments is a lengthy task, then it needs to be posted and you wait several weeks for the rebate. I'm feeling less anxious about the whole medical process now that most of it can be done from where I live ... such a relief... hope everyone has a great evening ...🤓

  • @crashdummy What a relief for you not having to do the trip to Melbourne. I couldn’t contemplate such a trip. You only need to get through the appointments now. That’s a long wait for an MRI (I used to do MRI bookings in a previous life) but it’s certainly worth the wait not having to travel. Yes I’ve had to fill out many a travel form but also well worth it once the rebate arrives. It’s great that the new technology is out there to make our lives that much easier.😊

  • Hello,
    I am not feeling too bad today, but noticeably not getting anything done. Sigh.
    C'est la vie.

    @crashdummy hooray for telehealth and other changes to medical appointments! The best thing to come out of this pandemic!
    And hooray for Medicare.

    I really need to do some cooking today (things need to be used before they are past it). I will get it down into tiny steps and see if I can make it through. Wish me luck!

    And good luck to everyone for the things you need to get done today.

    Q. Guess what I saw on a strawberry plant just now?

    A. 🐞

    Best wishes all

  • Hello ME/CFS Community,
    Here is your morning chat and cuppa ☕
    Pop on for a quick hello to everyone who is too crook to write here.

    Hello from me to everyone who is too crook to write here today. 👋

    My quiet day yesterday paid off. I finally got a bit of energy late in the afternoon and my good planning paid off. I made the stew and today I will put it into ramekins, top them with a delicious South American corn custard (ask me anything!) and freeze them all except one I will have for dinner.
    (It has been a bit drawn out, I meant to do the whole thing on Sunday, but that's life with ME/CFS)

    We delight in small news here 😄 What is yours?

    Best wishes for today 🐸

  • @Dot Well I have to tell you that I’m very pleased with myself. Yesterday I managed to get up early and go for a fasting pathology test and enjoyed my thermos and sandwich afterwards. Then I called into a different hairdresser where they do walk ins. Quick and easy, and no talking. And a very good job as well. I can’t believe that I managed two appointments in one day, and so far today I’m feeling okay. 🤗
    You have some interesting recipes Dot….

  • @Dot That stew sounds yum .... I love little ramekins: they are great one pot dinners ... perfect ... I've got a set of four somewhere .... I'm going to dig them out ... glad you recharged ....🤓

  • @Glimmer You must be feeling great with a new haircut ... there isn't any better feeling than getting the ''do'' right . Love the imagery of you and your thermos plus sandwiches ... Fasting isn't easy with ME: robbing your body for the test can leave you spinning around in your head: well done with having the food and drink on hand ... ☺

  • Hi everyone. I'm a partner/carer of someone who's been living with chronic fatigue for about five years. It's really nice to find a forum like this! I'm really looking for some advice - my partner's looking for a new GP and it's been pretty disheartening finding someone who takes fatigue seriously, let alone knows anything about it. On top of that, the specialist he was seeing at the Alfred has moved on. Would anyone have any recommendations for a good GP and/or specialist in Melbourne (in the northern suburbs would be nice)?

  • Community Moderator

    Welcome @Antimony and good on you for looking out for your partner 🙂 Just so you know, it's not appropriate to post recommendations for doctors in the forum, but people can send you messages via the "chat" option.

    Also, if you haven't tried it already, the Facebook group below may be worth looking into:

  • Good morning lovelies,

    Welcome here @Antimony, to you and your partner. I do hope you can find a good specialist. I am also in the northern suburbs of Melbourne, but I am just trying out a new GP (my old one retired) and while she seems great I am not recommending her until I know her better. So I do hope someone messages you with a great option, and/or that fb group comes up with the goods. 🤞

    @Glimmer Ooh isn't it lovely when good planning and that proportion of good luck that is part of every venture, combine to make such a productive day. Woot! 🤹
    I hope the day continued nicely and that you are loving your haircut.
    Good luck for the test results too.

    @crashdummy Yay ramekins. Mine are 2 cup sized so perfect for a small meal.

    Hi @Daffy_Dave

    Hi to everyone else too.

    I did get my ramekins finished (four in the freezer, two in the fridge and one eaten last night). Then I had a much better sleep than usual! So I have woken up in a good space to get things done (you should see the state of my kitchen after that 4 day ramekin marathon)
    (okay, no you shouldn't.... )
    Plus it is another glorious Melbourne day and I think I will have a chance to sit out and enjoy it.

    I'm so excited I am at great risk of overdoing things, so please send me urgent messages that I don't have as many spoons as I think I do!

    Off to the kitchen. Music on. Lots of hot soapy water. But I will also put the timer on for 20 minutes.

    What is your day like? Hope it has some good things in it. Best wishes and all good things 🍀

  • @Dot Remember the spoons ……

  • @Glimmer Thanks 🙂 Very helpful!

    (I did well until I finished 20 mins and made a cuppa, knocked the milk which managed to get inside a closed drawer and all over everything on the lower shelves and required another 20 mins cleaning! Aaaargh!)

    But I have survived to live another precious day.

    Cheers everyone, best wishes for today!

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