Severe me research
Good to see recognition of severe me.
See link below:
@iris very generous of Ellen to donate to this
Thanks for the news @iris, it's a great development and, as you say, very generous of Ellen Goudsmit
Thank you for this information, I will send it to our dietitian as we are looking into tube feeding at present.
It seems that they are reluctant to do NGT feeding at home ( said that it would require an xray ), so hospital visit necessary anyway and therefore a PEG would be better for feeding if needed for longer than four weeks. No easy solution to this it seems.