Severe me research

[iris]

Good to see recognition of severe me.

See link below:

https://meassociation.org.uk/2021/07/announcing-the-howes-goudsmit-prize-for-severe-me-research/

[iris]

@iris very generous of Ellen to donate to this

[Daffy_Dave]

Thanks for the news @iris, it's a great development and, as you say, very generous of Ellen Goudsmit

[msmac]

Thank you for this information, I will send it to our dietitian as we are looking into tube feeding at present.
It seems that they are reluctant to do NGT feeding at home ( said that it would require an xray ), so hospital visit necessary anyway and therefore a PEG would be better for feeding if needed for longer than four weeks. No easy solution to this it seems.