Severe me research
-
Good to see recognition of severe me.
See link below:
https://meassociation.org.uk/2021/07/announcing-the-howes-goudsmit-prize-for-severe-me-research/
-
@iris very generous of Ellen to donate to this
-
Thanks for the news @iris, it's a great development and, as you say, very generous of Ellen Goudsmit
-
Thank you for this information, I will send it to our dietitian as we are looking into tube feeding at present.
It seems that they are reluctant to do NGT feeding at home ( said that it would require an xray ), so hospital visit necessary anyway and therefore a PEG would be better for feeding if needed for longer than four weeks. No easy solution to this it seems.