How to stay connected to the outside world as a result from being bedbound and or housebound?

  • Personally my internet has been central here especially living in a rural area as well as the telephone. I either ring and or email people. Sadly I do not get to meet people face to face too often unless they visit and or I am at a medical appointment. I have been involved in the Rural Folk Online support group which has been going well so far! Sometimes the television and or radio is my company! How do you cope with the social isolation bought about by me/cfs and still stay connected to the wider community?

  • Much sympathy @donnamarie it is very hard to be so isolated. I use online as my daily interactions with people. Sometimes face to face is too hard. I know I am very lucky as I have some family social life.

    There are pros and cons with both.

    Real people contact is so wonderful, but it can also be overwhelming and I stop listening to my body, so I often overdo things. And there always seems to be something unexpected: a queue I have to stand in, or steps, or things taking longer than I planned for. Disaster! (Plus have to deal with all the times people say ignorant things, or I say stupid things because I am overtired).

    The good thing about online, especially forums like this one, is that I can read things when I am well enough to, and then think abut what I want to say before I write. I might still say stupid things, but it happens less often! 😄

    I feel my social life breathes in and out, sometimes I am trying more real world contact, maybe joining a group or attending something, or catching up with old friends, other times I breath in and concentrate on smaller, safer interactions from the comfort of home.

  • I don't know what I'd do without the Internet. I get almost all my social interaction online, and I'm so grateful to be living in an era when that technology exists and is so prevalent.

    As an autistic person, socialising has always been something that feels more stressful than relaxing for me. But I've noticed that since being mostly housebound, I actually have a higher "tolerance" for social interaction because it's so much less frequent. In fact I really look forward to mundane outings like going to the shops for food or getting a taxi to the doctor because those things have become like social occasions for me, an opportunity to observe and interact with other human beings in our natural environment. (I'm reminded of the idea of "eventising the small things" that someone else on the forum posted)

  • @Dot Thanks for sharing, Dot your experiences!

  • @river Thanks for sharing, River! I can relate to going to the supermarket, doctors etc. It is about the only time I interact too face to face! Like you I rely heavily on the internet. Thanks, again.

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