The unmet needs of people living with Myalgic Encephalomyelitis: The case of British Columbia, Canada.
The Convene Project is a preliminary project examining the unmet needs of British Columbians living with Myalgic Encephalomyelitis. The ME/FM Society of BC has produced the following materials from their pilot study:
This report would seem to reflect the experience here in Australia.
@Elizabeth-S Thanks for sharing this. Most of the pilot study seems to be echoed in the voices here on the forum. The unmet needs of ME/CFS sufferers is worldwide. Hopefully the tide will turn in the near future.
@Elizabeth-S Thanks for posting this, it is interesting and helpful for explaining the effects MECFS has on isolation and why. I have allied health visitors coming over the next couple of weeks and I'm over explaining ME101. I can print, highlight and they can read and ask for a copy. I find if I take a doc away the person nearly always wants a copy. It could educate more people.