New to the forum
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Welcome, @Noel!
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Hi there, call me passiflora! Thanks for the invite email. I'm in my 30s and I've had ME/CFS since I was about 14. Looking forward to comparing some management techniques/life hacks!
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Welcome, @passiflora!
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Hi Everyone, thank you to all the wonderful people that got this forum up and running. I'm looking forward to connecting with others in the same situation. I've been living with ME/CFS for 15 years now and I'm mostly housebound, but I do get out of the house on a mobility scooter on the rare occasion. I'm one of five in my family with the disease.
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@EmergeAustralia Hi everyone. My name is Jill. I live on NSW North coast and I am 61. I have had ME and Fibromyalgia since I was about 35. The level of severity fluctuates but I've never been bed-bound for longer than a few days so I consider myself fortunate.
Looking forward to being involved on this forum. Thanks for setting it up!
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Welcome @SandyAtHome and @Jill, great to have you here
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@Daffy_Dave thanks
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@SandyAtHome Hi, do you mean that there are 5 people ( including you) in your family who all have ME?
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@Heidi_Em_Aus Hi Heidi, I'm looking forward to being involved!
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Hi
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As someone who has been newly diagnosed with ME/CFS, I’m thankful to be part of this forum!
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@Jill. Hi Jill, yes 5 in my family including me. My 20 year old daughter, older sister, older brother and most recently 17 year old niece. Something definitely wrong with our genes!!!
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Thanks @Daffy_Dave. It's nice to be here.
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Hello! Great to see the forum up and running, thanks to everyone that's made it happen.
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Welcome @Coggles77
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Hi everyone! You can call me River. I use they/them pronouns. I'm in my mid 20s, I've had CFS for about 3.5 years and am largely housebound. Though my symptom severity fluctuates a lot, it's not safe for me to leave the house without a wheelchair so that's why I say "housebound". I'm also occasionally bedbound and seem to be getting progressively worse. That said I have a lot to be grateful for including (currently) being able to work a little bit from home, supportive family and a good living situation.
I'm excited about this forum and hoping it might finally mean that I can give up using Facebook (as the only reason I use it anymore is for the support groups). I guess it'll take a while to build up a community here though.
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Welcome @river
As you say, it will take a little while for the forum to 'build', but it's off to a great start, and we're confident it'll be 'humming' (on a low-energy frequency
) in no time
Thanks for putting your pronouns in your signature as well - that's reminded me to pop up a thread on how to set up signatures
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Hi all, glad to be here in the forum and looking forward to seeing it grow! I've had ME/CFS for about 7 years and have just moved back to New Zealand to be closer to family
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Welcome, @RebeccaNZ! Great to have you on board!
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Hi, the forum looks great. Have had ME/CFS for 6 years.
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@Loulou Welcome Loulou