Hello from the South Coast of NSW

  • Hi, my name is Bob and I was first diagnosed with ME/CFS in 2010. After treatment in England for CFS in 2014/15 I was fortunate to get a reprieve from the symptoms. I remained symptom free in 2017 and 2018, before relapsing in early 2019.
    I continue to treat my symptoms with supplements, adhere to the principles of pacing, eat nutritiously and have good sleep hygiene in an attempt to free myself again from CFS.
    I'm looking forward to sharing CFS stories with other suffers!

  • @blavender57 Hello Bob, it’s lovely to meet you. A relapse remains probably my greatest fear, it’s great that this forum allows us all to share our experiences.

  • @blavender57 Hi Bob : Nice to meet you on the forum. ME/CFS is such a bugger. It reared its' ugly head at around the age of 25 for me- of course after glandular fever. Life went on with the yoke around me, yet during those years, I still managed to have my children, work etc. These were extremely hard years for me and my family. I can remember my doctor telling me that when our immune system is down, the glandular fever virus can upset your system again. In the 1990's, CFS began to be a well discussed topic amongst the general population. There were a couple of specialists operating clinics for the condition. The wait time for an appointment was 2years. Of course the public consensus was laziness and a fabricated illness. You wouldn't dare tell anyone you had CFS or were surely sealing your doom. Epstein Barr Virus gave the condition a respected acceptance. Life goes on and you just keep living with it, trying to find information, ruling out other possible causes and dealing with the mental and emotional issues that develop from the battle. I wasn't diagnosed until nearly another 25years later. The symptoms prior to diagnosis had worsened to critical levels, requiring hospitalisation. I am soon to be 58 and in retrospect, I have learnt more about the chronic disease in the last 10 years. There have been wonderful developments and medical research. I have ways to manage; I've had many years to work it out but it still surprises me. Ageing and CFS is the scary part. Knowing how to plan for the future is very difficult when you are still trying to keep up with the present. My advice to all with this and any other added illness is to maintain a healthy sense of humour. The super sleuths are onto it - 🤓

  • Hi, Bob, Please to meet you!

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